It’s difficult to witness the physical and mental decline of a friend or loved one with a debilitating illness. In fact, it’s hard not to grieve while they are still alive, as responsibilities and relationships shift and lives change. Some might think that death would be a relief and grief shortened, but that’s not often the case.

My mother declined over a period of 18 months, and during that time, our roles steadily reversed. I loved her dearly, relying on her strength, and I grieved for her as she retreated from my life. Following surgery, she bravely and with great determination fought her way to recovery and amazingly flew by herself first west and then north for family visits. She died just three months after her visit with me.

The morning after her funeral, my first emotion was relief: I would no longer have to worry. No more frequent phone calls or arguments as I pleaded with her to forgo habits and activities that put her at risk. That relief quickly mushroomed into overwhelming grief, and it would take me time to learn how to live without her.

One friend had a different experience. She shadowed her parents during the year her father bravely fought cancer and again the following year when her mother’s cancer spread. By the second funeral,  she felt numb. Surely she grieved in those early days as she and her siblings settled the family estate, but she shared that she had done most of her grieving while her parents were still alive.

Another friend’s mother had dementia, and it robbed her of seven years of her life. Her mom’s decline was excruciating to watch. While driving her mom to the doctor one day, my friend’s mother asked, “Are you my mother or my daughter?” My friend lost control of the car and hit a parked car. After that incident, my friend prayed that her mom would pass away and find some peace. When the day finally came and her mother died, my friend was inconsolable. She grieved deeply until her own death, just eighteen months later.

Grief is such a personal experience. We all grieve differently based on our personalities, relationship with the deceased, life experiences, and probably a host of other factors. And we grieve in our own time. Just because we have a warning that a loved one will die doesn’t mean we are prepared for the loss. No matter the relationship or the age, few people are ready to say goodbye. Each of us needs the time, space, and extended support to heal and, hopefully, find peace. 

Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, available in ebooks for "Illness & Death," "Suicide," "Miscarriage," "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store.
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Photo: Magdalena Roeseler via photopin

​Copyright Legacy.com Used with permission

A young woman eight months pregnant gave birth to a stillborn baby. Overcome with grief, she asked her supervisor to share the news with her colleagues by e-mail so she would not have to individually communicate her devastating news. It seemed a simple request, but when she returned to work, she learned her supervisor did not notify her colleagues and they were each stunned when she painfully shared the news. Not knowing what to say or do, they avoided her and she felt shunned and alone in her grief. After a few months, she quit her job and left the company.

Afraid to say the wrong thing, many people stay away following a death. But it is important to understand how our actions, or lack of action, impact the loss that friends, family members, colleagues, and community members are experiencing. 

Here's what you should not do:

• Do not stay away; death is isolating and when you stay away, it will make the bereaved feel even more alone.

• Do not avoid returning phone calls from the bereaved.

• Do not refuse the bereaved when you are asked to help.

• Do not disregard family wishes for donations and make them instead to your pet cause.

• Do not avoid communicating the difficult news of the death, placing the burden on the bereaved.

• Do not ask the bereaved to do something for you when they can barely take care of themselves.

• Do not ask the bereaved for details.

• Do not ask for a possession of the deceased or ask for something back that you had given them.

• Do not pay a visit and expect to be fed or entertained.

• Do not expect the bereaved to reciprocate your kindness – this is one of those occasions that when they are able, they will pay it forward.

​Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, available in ebooks for "Illness & Death," "Suicide," "Miscarriage," "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store.
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I’m reading a murder mystery and the victim is a male adolescent. A group of parents whose children were friends with the victim meet to console one another. One parent asks, “Has anyone been in touch with his parents?” Other parents respond, “No. What could we possibly say?”

While this might be fiction, the dilemma is not. Many people shy away from the bereaved, or even the sick, because they don’t know what to say. Or, they stay away for fear they’ll say the wrong thing.

If you worry about saying the wrong thing, your fears are justified. Judging from the comments I receive, people frequently say inappropriate things to the sick and bereaved. I sometimes wonder why or how people could possibly say such insensitive things. That is, until I find myself once again in their shoes.

It’s natural to want to console and comfort but this does not come easy when hearing shocking news. And bad news is always shocking because we’re never prepared to hear it. A neighbor’s cancer diagnosis, a baby’s death before birth, a friend’s spouse who dies suddenly, or a loved one requiring emergency surgery. The unexpected can leave me grasping for words. 

So what do I do and what might help you when faced with terribly sad and shocking losses? I stop, I focus, and I think before I speak. If I’m face-to-face, I might extend my hand in comfort or give a hug. I might say, quite truthfully, “I’m so sorry,” with an emphasis on the word “so.” I might ask how I can be of help or offer to do something specific, such as making some calls or sending emails to notify others. Before I say anything else, I give myself the time to absorb and process the news.
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The one thing I find that truly helps is to let someone know I care. And not too long ago, when I needed support, a dear friend did just that. As our conversation came to an end she closed by saying “I love you.” It was just what I needed to hear. Maybe someone you know needs to hear it too.

Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, available in ebooks for "Illness & Death," "Suicide," "Miscarriage," "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store.
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It can be hard to know what to say to someone who’s experienced loss, but individuals facing loss need to feel they’re not alone. That’s why it is so important to make personal contact.  

“I don’t know what to say but this must be very hard for you.” Someone said this to me when I was going through a challenging time, and it was exactly the right thing to say. She was showing empathy, acknowledging that even though she had never faced my experience, she understood that it was very difficult.

It’s important to break your silence and acknowledge the loss. Communicate that you are sorry for their loss and, if appropriate, give them a hug, take their hand, or touch their arm. Also important: listening. Listeners are what mourners need most because it’s through telling our story that we begin to make sense of our loss. Listening supportively isn’t always easy, but it’s the best thing you can do for someone coping with the loss of a loved one.

So how can we listen more effectively with friends and family?

• Remember that to listen well, we need to be silent.
• Make time to visit in person or chat on the telephone. 
• Open with, “I’ve been thinking of you and wanted to see how you are doing today.” 
• Listen intently, facing the speaker and making eye contact. Keep a neutral expression. 
• Encourage the conversation by nodding and acknowledging their feelings (“I can understand” or “That must be hard”) 
• End the conversation by saying, “Let’s talk again soon.” 

The more you listen, the easier it becomes. And someday, you will need others to listen to you too.
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​Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, available in ebooks for "Illness & Death," "Suicide," "Miscarriage," "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store.

Do you need to acknowledge the caring gestures of flowers, donations, and meals following a death? And what do you do if these thoughtful acts were done in memory of a family member and you don’t know the donors?

Here are some guidelines for writing condolence thank you notes:

1. It is very thoughtful to thank individuals for their kindness following a loss. Sympathy thank you notes are very personal and what you say depends on how you feel about writing the notes.

2. The bereaved often create a template and use the same format for all notes, modifying as appropriate.

3. Some bereaved find that writing notes is an outlet for their grief and feel it’s therapeutic. Others find it terribly painful and are not up to the task. Mourning is not a time for guilt so either way is acceptable.

4. Notes can be simple, for example: "Thank you so much for the flowers in Sally’s memory. It was a very thoughtful way to remember her. Your kindness is appreciated." You can add: "Your caring gesture was helpful during this difficult time."

5. If you want to write more personal notes to friends, neighbors, or colleagues you can certainly let them know your loved one mentioned them many times and their friendship meant so much. Or, if individuals shared stories in their notes, you can let them know how much their note and thoughts of your loved one meant to you. Whatever strategy you take is fine; the most important thing is that you’re acknowledging others' kindnesses. And you are doing it for your loved one.

​Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, available in ebooks for "Illness & Death," "Suicide," "Miscarriage," "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store.

Every Memorial Day, I look for red poppies; the crepe paper variety, sold by veterans. I usually find mine outside a grocery store. And I wear it all day.

The poppies evoke such a special time in my life that I usually find a visible place to display them long after the holiday. And when I see one around the house, it brings back vivid memories of my father and the Memorial Days we shared while I was a little girl.

My dad was a veteran of World War II and after his discharge was active in the local Veterans of Foreign War (VFW) post. Our local VFW sponsored our town’s Memorial Day parade. I never got to watch the parade; I got to participate in it.

Each year, my father drove a car with a veteran from World War I. It was a tribute for the veterans but also special for me; I got to ride in the back seat. Our small town put on quite a parade and I felt fortunate to be part of it.

After the parade, my father took me and my two siblings back to the VFW post. We’d play softball out back and there was always a cookout. I don’t know why, but my mom stayed home. This was a special opportunity for us three kids to have time with our dad; nowadays we would call it quality time. Years later, it was all the more poignant after his early death.

So every Memorial Day, and Veteran’s Day too, I search for the poppies. I love to share my story with the veterans I meet; and it’s important to support all the veterans who give so much for our country, even in this small way.

Those simple poppies make me feel a sense of patriotism along with a connection to my family roots. I get a little red flower to wear for the day while paying tribute to the veteran I knew best, my dad.

Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, now available in three individual volumes: "Illness & Death," "Suicide" and "Miscarriage." Additional titles are available as e-books: "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store. Click here to order.

Image Source: StockXchng/straymuse

Copyright www.Legacy.com  Used with permission

Nothing prepares us for difficult news. Friends or loved ones may say, “I have something I need to tell you,” or, “I wish I could tell you this in person.” When we hear these words, most of us understand we’re going to learn something that’s not easy to hear.

Cancer is a scary thing. Even with medical advances and longer life spans, we still fear the word cancer. And that’s not the only disease that frightens us. What do you say when a friend or loved one shares, “I’ve been diagnosed with cancer (or some other difficult illness)?”

Most likely, you’re caught by surprise. So you may respond honestly, “I’m shocked as you must be. I don’t know anything about this cancer (or other illness).” That leaves the door open for your friend or loved one to explain things. While they’re talking, you should have enough time to get your bearings. When there is a lull in the conversation, you might ask, “How are you doing with all of this?”

What doesn’t help? Crying or showing your distress. Your friend or loved one is dealing with their own emotions and fears; it’s not their job to comfort you. This is one of those times when you need to gather your strength and put on a strong front. Shed your tears in private and confide your fears to someone else.

When the news is shocking we must stand tall. And lend our strength to the loved ones that need it.

Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, now available in three individual volumes: "Illness & Death," "Suicide" and "Miscarriage." Additional titles are available as e-books: "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store. Click here to order.
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Your Facebook feed keeps you informed through the quips, quotes, and photographs that friends post. Most of the news is happy banter, but more and more we learn sad and tragic news from our friends through social media.

When the news of a young adult who died by suicide was posted on Facebook a few years ago, I was surprised. The funeral arrangements followed along with an outpouring of condolences for the family. People were “liking” posts and condolence messages and yet Facebook felt like an impersonal place for such visible grief.

Nowadays, the most universal means of sharing news of a death is through social media. It’s become so commonplace that I purposely check my Facebook feed more regularly to ensure that I don’t miss any difficult losses happening to my friends.

It seems inevitable that our friends, sharing their happy times, would share their sorrows. Last week, another young adult in my community died. The news was shared on Facebook by the bereaved mom. Legions of support quickly surfaced in Facebook feeds. An obituary in the local paper was linked to Facebook and details of the memorial service were disclosed.

Within hours after the funeral, the obituary and eulogies, along with tributes, were appearing on Facebook. Heartfelt condolence messages were posted and so appreciated that they solicited likes. Tributes on BuzzFeed and YouTube continue to appear with no end in sight.

Uncomfortable topic

While death remains an uncomfortable topic, Facebook has come to play an important role in bringing grief into our national conversation. When Sheryl Sandberg, Facebook’s COO, lost her husband, her candid posts on Facebook elicited a wellspring of condolences and further opened the dialogue on death. Mark Zuckerberg, the co-founder and chief executive at Facebook, wrote on Facebook about his experience with miscarriage, and he too shared his grief openly.   

Facebook allows us to memorialize our loved ones through tribute pages, giving friends and family a place to remember and reminisce about the deceased. These open communities help us feel less isolated in our grief. They give us a shared space to post our photos and grieve our losses.

A more current trend is to post photos and memories of our deceased family members and friends on their birthdays and the anniversaries of their deaths. It is a way for our friends to remember their loved ones and elicit support from their social network.  

So how do you, as a Facebook friend, deal with loss? It is perfectly acceptable to express your condolences on Facebook. Feel free to write a comment of support, like another’s post, or share your own memories or photos of the deceased.

If you are uncomfortable talking so publicly about the pain of loss, you can ignore it. Just continue to handle condolences in the more traditional ways. Whatever you choose to do, one thing is for sure, social media is going to continue to define and re-define the ways in which we communicate.

Robbie Miller Kaplan is an author who writes from a unique perspective as a mother who has lost two children. She has written How to Say It When You Don't Know What to Say, a guide to help readers communicate effectively when those they care about experience loss, now available in three individual volumes: "Illness & Death," "Suicide" and "Miscarriage." Additional titles are available as e-books: "Death of a Child," "Death of a Stillborn or Newborn Baby," "Pet Loss," "Caregiver Responsibilities," "Divorce" and "Job Loss." All titles are in Amazon's Kindle Store. Click here to order.
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